Thanks, Continental. No. No, REALLY. THANKS.

So, I had a $555 credit at Continental Airlines from canceling this summer’s Guatemala trip. I used, or at least I thought I did, this credit to purchase tickets for myself and Ian to fly to Littlest Bro’s wedding in November.

Let me break this down for you, and you tell me if this makes any sense.

I have a $555 Credit Voucher. I use $220 of that to purchase my ticket. I cannot, due to good old Continental’s rules, purchase Ian’s ticket in the same transaction. I purchase my ticket, and receive a $330 “Certificate” which I can then use to purchase Ian’s ticket. I do so, online, receiving a confirmation number and all that jazz.

Today, I realize I did not receive a confirmation email for Ian’s ticket. I log on with his confirmation number to find that the “status” of his ticket is “not purchased.” Whaaaaaaaaaaaaaaa? I check the balance on the “Certificate” to find that the $220 has already been withdrawn to pay for his ticket, which I THOUGHT I had done on Saturday when I made the initial reservation.

Well, turns out these flights are technically “code-shared” with United Airlines. Which means I can’t use a Continental “Certificate” to purchase them. However, I could use a Continental “Credit Voucher” to purchase mine. IT’S THE SAME DAMN MONEY FROM THE SAME DAMN PLACE, CHANGING THE NAME OF IT SHOULDN’T CHANGE WHAT YOU CAN BUY WITH IT.

So, in the process of buying my tickets, my credit with the airlines turned from a “Credit Voucher” into a “Certificate”. AND, the computer system DOESN’T RECOGNIZE THE DIFFERENCE which is why I thought my initial purchase had gone through. The deduction made to the “Certificate” showed in their computer system as “pending” and it supposedly will be returned to the Certificate in 24 hours. On my end, all I can see is that the deduction was made. So, I ended up having to pay for Ian’s ticket with a credit card. After speaking to a representative who hung up on me because “I didn’t know what I was talking about”.

NO SHIT I DIDN’T KNOW WHAT I WAS TALKING ABOUT, THE INFORMATION I WAS WORKING WITH, GIVEN TO ME BY YOU, DIDN’T MAKE ANY GODDAMN SENSE.

So, I know have a $220 charge on my credit card, when I have a $333 Continental “Certificate”. Which I may never get to use. Which is EXACTLY what they want to happen.

Ian and I were Watching “The Price Is Right”

And it dawned on me: for some of these people, appearing on this show is perhaps the highlight of their existence. If you asked them to name memorable days in their lives, sure they’d probably list their wedding day, birth of their children, maybe graduating from school of some sort, but you bet your sweet ass “spinning that big old wheel” would be up at the top of their list of memorable moments.

And then there’s the folks who, upon winning a china hutch or a trip to Arkansas or something, burst into tears and thank Jesus for their good fortune. I hate to burst their bubble, but I have a sneaking suspicion that there is a great possibility that Jesus was not involved in this transaction.

I’ve never understood fanatical devotion to any celebrity of sorts. I would not have cried or screamed had I been in the audience of the Ed Sullivan show when the Beatles made their legendary appearance. There is no person I can think of that meeting them would reduce me to tears. Does this make me a cynic? Or is it just the WASPY side of me moderating my enthusiasm? I’m not sure, but I do somehow feel a sense of superiority when I view these strangers being reduced to tears by a game show. Maybe I’m just an asshole. I suppose that’s a possibility.

Re: My Father’s Sense of Humor

It was 1999 or 2000, right around the time the lovely ballad “Who Let the Dogs Out” was gracing the airwaves. I was in my room, home on a break from college, talking to Ian on the phone. We had an intercom in our old house, one that my parents used mostly to spy on me because they were convinced I was constantly Up to Something.

My father, via intercom: “Hey, are you talking to Ian?”

Me: “Yes, I am.”

Dad: “Tell him I have something important I need to tell him.”

Me: “(Sigh) My father has something important he needs to tell you. What did you need to tell him, Dad?”

Dad: “Tell him, I LET THE DOGS OUT.”

Me: “That’s great, Dad. Can I go back to my conversation now?”

Dad: “Okay.”

Things That Piss Me Off: Edition # 80 Bajillion

When I first meet someone, either online or in “The Meatspace”, the first thing that usually gets asked is “what do you do”? For me, this is currently a complicated answer, as I have to run through the fact that I’m in Grad School, yes this is my second Masters Degree, yes I had an entirely different career path at one point, and no, I’m not working full-time right now nor have I been a salaried employee, so to speak, since 2008.

More often than not, the reaction I get to this is: “Cool. Wow, teaching is hard. Good for you”.

Every once in awhile though, I get “Oh, hurdy-hur-hur, can’t handle working? Perpetual student? MUST BE NICE to not have to WORK. Herpy-derp-derp”.

To me, this implies that “work” is somehow more difficult than “study”, and I think anyone who has ever pursued any education beyond high school or even college would be quick to dismiss that idea. When one is a “worker”, one goes to work, comes home, and (ideally) doesn’t have more work to do when he or she returns home. When one is a student, particularly in a Masters or Doctorate program, one goes to “work”–aka class, then returns home to even MORE work. Your profession, that of a student, follows you around from waking to sleeping, and, if you are a good student or endeavor to be one, you put a tremendous amount of effort into what it is you do.

In my particular program, I’m not just working towards a degree, I’m working towards the professional certification necessary to be a full-time, certified teacher in the state of Illinois. So there are even more hoops I must jump through: assembling a portfolio, getting hands-on field experience, and taking multiple mandated state tests. The culmination of this program is student teaching, during which we are not allowed to have another job, so even if I wanted to or could manage to do so, I couldn’t have another job.

During my first Master’s degree I did work, and in a very tough and time consuming, not to mention low-paying, position as the Marketing/PR Manager for a theatre company. This time around, I chose not to work, mainly because I wanted to devote as much time as possible to developing my skills as a teacher, and so I’ve done a variety of part-time and volunteer positions doing just that. Am I lucky that I don’t have to work 40 or more hours a week in addition to school? Absolutely, and I don’t forget that or take it for granted. Does that mean I’m lazy? Absolutely not.

Additionally, obtaining a full-time teaching position in the public schools is impossible without certification. I could be a teacher’s aide, but no school in their right mind would hire me as a teacher’s aide because I’d only be able to give them a year and a half, at the most, before starting student teaching and then I’d be certified and wouldn’t want to be an aide anymore. Would you hire someone who you know has one foot out the door? Didn’t think so.

Next time I get faced with one of these “work is superior to study”, I’m going to posit this question: “How would you have reacted if I told you I worked at McDonald’s? WalMart? Starbucks, even? Would you have held me in higher regard? Or lower, assuming I was uneducated and only capable of maintaining a minimum wage job?” I would think that most of these Herp-a-Derps, who are clearly judgmental to begin with, would think less of me, thus invalidating their argument that Work > Study.

I’m looking forward to the next person who throws this attitude at me so I can conduct this social experiment, because my instinct tells me it will end in one of my favorite things: a hearty round of Told You So. I already know that judging people based on their profession is closed-minded and a simpleton’s view of the world: I’m just eager to teach others the error of their own misguided thoughts. As a “liberal academic elitist” who “doesn’t know the value of a hard day’s work”, I’m hoping they’ll allow me that one small joy. If not, I’ll tell them to go take a long walk off a short pier. I’m thinking that’s an “everyman” sentiment they can understand.

This? Is What the Internet is for.

I put this on my Tumblr but I couldn’t help but reblog because it’s just too good.

Days Like Today

On days like today I stand under the shower for as long as I can. I crank the water up as high as it will go, so that the sensation of heat and scalding water on my back, neck and shoulders eventually becomes as noticeable as the dull roar of pain beneath my skin. I do my physical therapy exercises, which I know help, but at the moment feel like ripping muscle off of bone.

Sometimes, as I stand there, my skin an angry shade of hot pink, I’ll cry a little, because what else am I supposed to do?

No one prepared me for this. At my prestigious liberal arts school, my parents paid nearly $40k a year for me to learn the things I’d supposedly need to survive the world, more than survive it, to conquer it, do whatever it was I wanted and craft my life to be how I wanted it through a combination of hard work, being nice to people and being innately slightly more intelligent than the norm.

There were no courses on this in my first Masters program either. While we debated how to change the world whilst resuscitating a long dead artistic medium, none of us stopped to think that something so simple and primal as physical pain would be the thing that stopped us in our tracks.

I can tell you a lot of things. I can quote Shakespeare, I can sing in German, I can tell you exactly how to spend $25K in advertising to promote the touring production of CATS for a four-show sit down at the Civic Center in Abilene, Texas. I can tell you a plethora of methods for teaching multiplication to 8 year olds who don’t speak English. I am a font of knowledge, most useless, and was led to believe from an early age that this plus a desire to work myself stupid was what was going to ensure that everything would turn out exactly the way I wanted it to, forever and ever Amen.

I cannot tell you how to deal with this. I can teach you stuff to buy to slather on your tight, throbbing muscles, books to read and things you shouldn’t eat to try and make the best of what is basically an untenable situation. But I can’t yet tell you how to really deal with this. Days like today, I can’t even tell you how to begin to try.

So, yeah.

Courtesy of The Bloggess

Monkeys!

That’s all I got today.

I just joined a new Fibro support site:

The feature I like most is that you can track your daily symptoms, it will compile them, summarize them by day, week or month and you can then print that out and take it into your doctor. You can also have your doctor, primary caretaker and any other people who treat you log on to your account to add information or view your information.

There’s also forums, articles and other things of interest to Fibromites. There’s one thing I always hate about these sites, though, and that’s filling out my profile. Don’t get me wrong, y’all know I’m comfortable talking about myself. What I hate is checking all the little boxes for all the comorbid conditions I have as a result of Fibro/CFS. Here’s the rundown:

Fibromyalgia, Chronic Fatigue Syndrome, persistent upper respiratory infections, interstitial cystitis, depression, GAD, sleep disorders, migraines, Raynaud’s, TMJ, RLS and IBS.

I mean, seriously. That is the list of health conditions an 85 year old should have, not a 29 year old who, by all accounts, LOOKS perfectly healthy. That’s the frustrating part. None of the illnesses or conditions I have manifest themselves in an obvious physical way. So, when I see people, they assume I feel fine. Often, I don’t, and if I do feel well enough to have gone to a social event? There’s no guarantee I won’t start to feel fatigue or pain the next day, the next hour, or the next minute, even. Socializing isn’t much fun if you’re bracing yourself for possibly feeling unwell and trying to figure out how to make a hasty retreat without seeming rude. I’m trying not to be so fatalistic about it these days but, frankly, that is the reality a good percentage of the time.

I hope, as time goes on, not only will I learn better how to manage my symptoms and energy levels, but I’ll also learn to have a more positive attitude about things, and enjoy the things I am able to do, even if it is less than I wish I could do. It sounds so incredibly easy, but it is one of the hardest things I’ve ever tried to do, mentally.

If anyone has any ideas or suggestions on this kind of stuff, man could I use them. I’ve conquered a lot of other mental demons in my lifetime, but this one is particularly difficult to slay. Must be an end-level boss or something. I better get, like, a MAJOR bonus at the end of this level because this shit is hard, y0.

I know, I know…

I’ve been horrible about updating here for the past few months. Between the end of the semester, looking for a new place, moving into said new place and all that goes along with moving I’ve been pretty much brain dead. Not to mention looking for tutoring clients, attempting to have a social life, doctor’s appointments, physical therapy, and, you know, trying to pay some attention to my husband and pets.

We’re 99% settled in the new digs now–just have to find little things like curtains and such. I woefully underestimated how much moving was going to zap my energy–all I did this weekend was sleep and sit on my ass, when I wasn’t unpacking something or making a run to Target or Home Depot or the grocery store. I’m starting to get the hang of where things are in the new neighborhood, and I’m excited to be closer to Evanston, mainly because one of my best friends lives there, but also because it’s a nice break from the city-more of a college town feel thanks to Northwestern, which Ian and I both love.

All in all, the move was relatively painless, but it is still tiring for the average person, and thus doubly tiring for someone with CFS.  Fortunately I seem to have had only a minor flare period following the move: I was very conscious of pacing myself, getting enough rest and not trying to lift anything heavy. I felt somewhat guilty about this, since Ian had to do all the heavy lifting, but, as usual, he did it cheerfully and eagerly.

The past year has been a trying one, with the death of my beloved grandmother last June, and the escalation of my health issues and diagnosis in October. As we’re nearing our 6th wedding anniversary on the 20th of June, I can’t help but think that somehow, despite the shitstorm we’ve weathered in the past 12 months, our marriage has actually grown stronger. I can’t fathom how I would survive my every day life without my husband. His support goes way beyond the household tasks he has to help me with, beyond the microwaving of heat packs and picking up prescriptions. Even if I occasionally act less than grateful, he’s my best friend and I feel incredibly lucky to have such a supportive spouse, and that we managed to find each other so early on in our lives, and stick together through the growing pains of early adulthood and all the other issues we’ve encountered in the 11 years we’ve been together.

I recently read that the divorce rate amongst spouses when one has a chronic illness is as high as 75 percent. Yikes. Unfortunately, I understand why: dealing with a chronic illness is not what anyone thinks they’re signing up for when they enter into a marriage. Also, the spouse with the illness experiences a tremendous amount of depression, sadness, even guilt for how their illness has changed their lives.

Somehow, despite all this, we seem to have figured it out. I try to be as gracious as I can in my many daily requests for his help. Frankly, I’ve always been a tremendously independent person, and having to ask anyone for help with anything initially made me very angry and frustrated. Fortunately, I can do more now on a daily basis than when I was first diagnosed, and I’m lucky to have a spouse who enjoys taking care of me. Nothing is perfect, of course, and we still have moments where one or the other of us gets annoyed or pissed off at the other one for a multitude of reasons. Thankfully, we seem to have figured out how to not make my illness be a point of contention.

Hopefully the next 6 years of our marriage will have more good times than bad. Between his illness a few years ago and mine, we’ve certainly done our best to test that “in sickness and in health” thing. No matter what happens, all I can hope is that we will both keep finding ways to remember how much we love one another, even if and when our lives are less than perfect.

That, it seems, is the trick to staying married: hanging in there through the times where you’re not exactly thrilled with one another, or with your life in general, and knowing that it will get better if you can exercise some patience and remember to be kind and fair to one another. Six years of marriage certainly doesn’t qualify me as any expert, but so far, that seems to be the trick. Some days it is easy, other days, not so much, but our marriage is the #1 priority for both of us, so we try as hard as we can.

My summer seems like it should be relaxing, and now that we are settled in I’ll have more free time and will make an effort to update more than once in a million years! I’ve got a few posts that have been on the back-burner for awhile, so stay tuned in the next few days and hopefully I’ll cough up something amusing for you all. Thanks a million to my loyal readers–especially those of you that bug me to post! If it wasn’t for you I’d basically just be talking to myself, and Lord knows I do enough of that as it is.

I hope this summer will be warm and wonderful for you all!

Death, Dying and Other Uplifting Topics

I am lucky to have not experienced many deaths in my life. I can count on one hand the number of funerals and memorial services I have attended. While in one way this is a blessing, in that most people close to me are alive and well and I haven’t borne witness to many true tragedies, in some ways my psychological and spiritual knowledge of the concept is somewhat stilted and immature. I haven’t thought much of death, or my own opinions on the afterlife, simply because I haven’t had much necessity to do so.

The people I surround myself with in my life, both in “real time” and in my online dabblings, lean towards the intellectual. While a well-crafted “your mom” joke is certainly appreciated, and goofiness is welcomed, most of my friends and acquaintances tend to have very strong and well-researched opinions and knowledge on a wide variety of subjects. I have friends who are particle physicists, social workers, artists of various mediums, literary Doctorates, lawyers, computer experts in both software and hardware, engineers and more. The majority are college graduates, and a large percentage hold a post-graduate degree, some with several. So, it goes to say, that I often find myself in the midst of debate on particularly heady topics.

Recently, an individual I follow on Twitter, who is a college professor and holds a Doctoral degree, was discussing his theories on the afterlife. From his scientific viewpoint, he speculated, we’re all just matter. There’s nothing that differentiates our particles from any other carbon-based life form, and when our physical entity ceases to create and consume energy, that’s the ultimate end of our existence. Interestingly, he chose to cite Heidegger, a philosopher, rather than any scientific evidence as support for his thesis: that the concept of life after death conflicts with many major scientific concepts. This struck me as being somewhat intellectually arrogant, and also devoid of any emotional ideas or feelings about death, which I feel are impossible to completely separate from any “facts” one might propose, and shared this opinion with him. Then, of course, he was curious as to what my opinion on the matter was, and what I based my beliefs on.

This was the moment where I realized: I have no idea what my opinions on the afterlife are. Or at least, I didn’t think I knew. Taking a moment to collect my thoughts and attempt to condense them into 140 characters, I realized that my opinion, as well, is based more on science than religion. The reason I don’t propose one answer or one distinct concept of what the afterlife is like, is because I have no personal data on the subject. I don’t know, I haven’t been there, and no other living human being can even begin to think that they have concrete proof of what happens or doesn’t happen. I don’t really subscribe to any one religious or philosophical dogma, and while I have my hopes as to what the afterlife will hold for me and those I love, I simply have no idea what it is actually like, or if it exists at all.

And, it dawned on me shortly thereafter, I am entirely comfortable with this. I’m not foolish enough to think I can predict what will happen during my own life, so why waste energy fretting about what happens after it? This was a pretty big “a-ha” moment for me, as I’ve always been very keen on planning and controlling my own life as much as possible, and often would find myself inconsolably panicked and distraught if things didn’t align to my own plans.

Well, the past 4 years have pretty much succeeded in shooting many of my plans to hell, so I’ve been forced to come to the realization that to some degree I have no idea what is going to happen in my life. I can strive to be financially and personally successful, and surround myself with people who make me happy, but other than that it’s pretty much a crapshoot.

Since 2006 my husband got been sick–very sick–and was diagnosed with a syndrome that can pop back up whenever it feels like it and render our lives far more difficult than we could have imagined. I’ve also had two jobs from hell, encountering individuals whose behavior was far more sociopathic and malicious than I ever could have imagined. I  made a complete and total career change, supported my parents through a very difficult time wherein professional allies turned out to be enemies in every sense of the word, survived a bout of depression that landed me in a psych ward, and, the icing on the cake, been diagnosed myself with some major and chronic health problems which you’ve all heard plenty about lately.

All of these realizations about my complete lack of power over the course of my life and the afterlife have come at a somewhat poignant time, as I near the first anniversary of the death of my grandmother. Not knowing for myself is one thing: but not knowing what a loved one experiences in the afterlife, if anything, is more difficult for me. While the thought that good people go to heaven and bad people go to hell is comforting, what about good people on earth who go through living hell for no reason? My own struggles in the past few years pale in comparison to what some people are forced to live through.

It does bother me to think that I don’t know exactly what happens when the people I love leave this earth. No matter how strongly one believes in one’s faith and its description of the afterlife, the reality is that belief and knowledge are two different things. This creates, for me, a philosophical and spiritual query wherein I can see only two options:

1) Resign myself to not knowing.

2) Come up with my own thoughts on the subject, based on my own grab-bag of religious and intellectual concepts.

A true intellectual would say that option #2 is just a safety blanket to protect one’s feeble mind from a giant scary unanswerable question. However, in my experience, most “staunch” intellectuals are, frankly, often completely isolated in their own brains and incapable of interacting with the majority of the human race. They are often, also, arrogant, pedantic pains in my ass.

So I guess, for now, I’ll go with option #2, and begin to start forming my own thoughts on the subject. Based on my recent life experiences, I would have to say I don’t think I believe in hell, at least in a traditional Judeo-Christian sense, because I think life affords us all plenty of hellacious personal experiences, and human beings and animals as a whole suffer plenty at each others’ hands on earth.

And I know what I would want for my loved ones: My MomMom, paternal Grandmother, and both Grandfathers who are now all no longer with us. That is, I would want it to be whatever they want it to be. I would want them to be happy, and beyond that the specific parameters should be whatever they desire them to be, based on their own personal and spiritual beliefs. No matter how intellectual one is, I think everyone shares this hope. And, logic would dictate, that if every human being can agree on this fact, that they would just want their loved ones to be happy, then doesn’t it stand to reason that maybe that is the reality of the afterlife.? I hope so.

June 20th will be the one year anniversary of MomMom’s passing, and, also, my 6th wedding anniversary. While the day will be difficult for me, or at least bittersweet, I can hold on to the hope that at least she’s had a better year than I have. I hope she had a great year, because it’s what she deserves. That’s the best I can do: to hope, and for now, I’m okay with that.